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With so many elements of our healthcare system being complex, often patients are not informed of their healthcare rights and responsibilities.
With educational content, and powered advocacy, voicing the needs of all healthcare users, we intend to find a way to be heard and to generate change.
Founded on research-based evidence, civil society alliance-building and effective engagement with policy makers,his platform will facilitate self-advocacy, generate debate, monitor implementation of health policies and highlight specific shortfalls in implementation. . It will also offer patients and healthcare users the opportunity to unite, speak up, collaborate and voice their issues to help leverage change in healthcare in South Africa. The more people involved the more change we can leverage!

Key Focus Areas
While this is a Rare Diseases South Africa (RDSA) initiative and will kick off with an issue related to Prescribed Minimum Benefits (PMBs), it is open to all healthcare users to raise their issues and we anticipate participation across disease groupings for all – including common, rare, infectious and non-communicable diseases. Focus areas identified for inclusion
• Health Policy
• Health Care Access and Financing
• Resources to educate patients so they can make well-informed healthcare decisions
• Policy Implementation
This initiative is conceptualised by Kelly du Plessis, the founder and CEO of RDSA, who has dedicated the last decade of her career to advancing healthcare access for many marginalised and vulnerable communities in South Africa and further afield

Join us today to ensure that all patients in South African have greater recognition, support, better health care, and a better overall quality of life.


health, healthcare, DearMinisterOfHealth, HealthAdvocacy


  1. Avatar

    coenie groenewald

    R66,919 raised

  2. Avatar

    Ilana Ligthelm

    R18,167 raised

  3. Avatar

    Andrew Crowe

    R450 raised

4 Fundraiser projects


  1. Trinette Eckard

    12 January

  2. Tanya van der Walt

    13 September 2022

  3. Trinette Eckard

    7 September 2022

58 Donations

Fundraiser projects

4 Fundraiser projects

I am raising funds for Rare Diseases South Africa

By Monique Hart

Hi! I need your help. I'm raising money for Rare Diseases South Africa, which does great work for...

0% Completed
R0 raised
R5,000 Target

I am raising funds for Rare Diseases South Africa

By Andrew Crowe

Hi! I need your help. I am running the 2022 Comrades Marathons on the 28th August, this will be t...

1.8% Completed
US$27 raised
US$1,500 Target

I am raising funds for Rare Diseases South Africa

By Ilana Ligthelm

Hi! I need your help. I'm taking part in Comrades Marathon 2022 to raise money for Rare Diseases ...

100% Completed
R18,167 raised
R10,000 Target

I am raising funds for Yolanda’s medication

By coenie groenewald

Yolanda has Cystic Fibroses (CF), she is married to Coenie and wants to spend the rest of her lif...

26.7676% Completed
R66,919 raised
R250,000 Target