WHAT IS ALS?
- Amyotrophic Lateral Sclerosis (ALS), is a currently fatal, progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. It begins with muscle weakness - sometimes in the arms or legs first, while sometimes it appears first with slurred speech or difficulty with swallowing.
- Every 90 minutes, someone is diagnosed with the disease and someone passes away from it.
- ALS can affect anyone worldwide regardless of racial, ethnic, or socioeconomic status. In general, symptoms commonly develop between the ages of 40 and 70, with the average being 55 years of age at diagnosis.
- Most (about 90 percent) of ALS cases occur without family history, which is known as sporadic ALS. The remaining 10 percent of ALS cases are inherited through a mutated gene, which is known as familial ALS.
- Currently, there is no cure for ALS but there are many promising clinical trials underway which require significant funding to advance.
- YOU can make a tremendous impact!
ALS ONE is an unprecedented partnership of ALS researchers, clinicians, and care providers from The Healey Center for ALS at MGH, UMass Medical School, ALS TDI, and Compassionate Care ALS (CCALS), who have united to expedite breakthrough treatments towards a cure for ALS while providing care resources and essential equipment to individuals who are currently living with the disease. ALS ONE is unique for its incorporation of both research and care into its pillars, its leadership in efficiency and dedication to innovative research, and its commitment to increasing access to care resources, equipment, and treatment.
- Dr. Merit Cudkowicz, MD, MSC Chief, Neurology Department - Director, Sean M. Healey & AMG Center for ALS Mass General Hospital (MGH) and Julianne Dorn Professor of Neurology Harvard Medical School.
- Dr. Robert Brown Jr., MD, DPhil, Chief of Neurology, UMass Medical School & Center.
- Dr. James Berry, MD, MPH - Chief, Division of ALS and Motor Neuron Diseases at MGH and Director, MGH Neurological Clinical Research Institute (NCRI).
- Dr. Sabrina Paganoni, MD, PhD - Co-Director of the Neurological Research Institute (NCRI) at the Massachusetts General Hospital, physician scientist at the Healey & AMG Center for ALS, and Associate Professor at Harvard Medical School.
- Dr. Fernando Vieira, MD., Chief Science Officer & CEO, ALS Therapy Development Institute.
- Ron Hoffman, Founder and Director Compassionate Care ALS (CCALS).
If you would like to APPLY TO RUN ON TEAM ALS ONE IN THE 2023 BOSTON MARATHON, please click HERE.
If you would prefer to mail a check in support of one of our runners, please make out to ALS ONE and send to: ALS ONE, 8 Industrial Way Whitman, MA 02382. Please include the runner's name in the memo portion of the check.
Visit us at www.ALSONE.org and contact us by phone at: 781-523-3304 or by email at:
ALS ONE is a registered 501c3 non-profit organization and donations are fully tax-deductible.
THANK YOU for supporting our ALS research and care!
YOU are truly making a difference!