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ALS ONE BOSTON MARATHON® TEAM 2022

We are extremely proud and honored to be an official Partner of John Hancock in the Marathon Non-Profit Program

What is ALS

  • Amyotrophic Lateral Sclerosis (ALS), is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. It begins with muscle weakness - sometimes in the arms or legs first, while sometimes it appears first with slurred speech or difficulty with swallowing.
  • Every 90 minutes, someone is diagnosed with the disease and someone passes away from it.
  • ALS can affect anyone worldwide regardless of racial, ethnic, or socioeconomic status. In general, symptoms commonly develop between the ages of 40 and 70, with the average being 55 years of age at diagnosis.
  • Most (about 90 percent) of ALS cases occur without family history, which is known as sporadic ALS. The remaining 10 percent of ALS cases are inherited through a mutated gene, which is known as familial ALS.
  • Currently, there is no cure for ALS but there are many promising clinical trials underway which require significant funding to advance.

ALS ONE is a partnership of world-leading ALS researchers, doctors, and care practitioners focused on finding treatments for ALS and novel approaches to improve care for individuals currently living with the disease. The unprecedented linking of minds and resources from Massachusetts General Hospital (MGH), University of Massachusetts Medical School (UMMS), ALS Therapy Development Institute (ALS TDI), and Compassionate Care ALS (CCALS), is unique for its leadership in efficiency, dedication to innovative research, and commitment to increasing access to care and treatment.ONE TEAM: Dr. Merit Cudkowicz, MD, MSc, Chief of Neurology, Massachusetts General Hospital (MGH); Dr. Robert Brown Jr., MD, DPhil, Chief of Neurology, UMass Medical School & Center; Dr. James Berry, MD, Co-Director of the MGH Neuromuscular Division and of the MGH ALS Unit, and he is an Associate Medical Director of the MGH Neurological Clinical Research Institute (NCRI); Dr. Fernando Vieira, MD., Chief Science Officer & CEO, ALS Therapy Development Institute; and Ron Hoffman, Founder and Director Compassionate Care ALS (CCALS).ONE GOAL: Identify a breakthrough treatment and ultimate cure while improving the care now for those battling ALS.

Please take a moment to be inspired by this video: https://vimeo.com/152829958 

If you would prefer to mail a check in support of one of our runners, please make out to ALS ONE and send to:

ALS ONE, 8 Industrial Way Whitman, MA 02382
Please include the runner's name in the memo portion of the check.

Visit us at: www.alsone.org | By phone: 781-523-3304 | By Email: Jen@alsone.org or Ashley@alsone.org

ALS ONE
 is a registered 501c3 non-profit organization.THANK YOU from the bottom of our green arrow on our logo, and the bottom of our hearts for supporting our team and our mission! 

YOU are truly making a difference!

health

Fundraisers

  1. Avatar

    Ryan Cox

    US$31,426* raised

    * Includes funds from other sources.
  2. Avatar

    John Kutz

    US$23,790* raised

    * Includes funds from other sources.
  3. Avatar

    Michael Garcia

    US$18,013* raised

    * Includes funds from other sources.
  4. Avatar

    Beth & Emily Helenius

    US$26,153* raised

    * Includes funds from other sources.
  5. Avatar

    Holly Mahling

    US$10,173* raised

    * Includes funds from other sources.
7 Fundraiser projects

Donations

  1. Robert Smallwood

    31 May

    US$50.00
  2. Dave Anderson

    31 May

    US$100.00
  3. Anonymous donation

    26 May

    US$1,100.00
742 Donations

Fundraiser projects

7 Fundraiser projects

I am raising funds for ALS ONE

By Annie Lankford

Hi! I need your help. I'm taking part in 126th Boston Marathon to raise money for ALS ONE!!If you...

53% Completed
US$2,650 raised
US$5,000 Target
0 DAYS

I am raising funds for ALS ONE

By Ryan Cox

Hi All,I want to thank EVERYONE- family, friends, and people I have never met, that have so ...

109.666666666667% Completed
US$31,426* raised
US$15,000 Target
0 DAYS

BETH & EMILY 2022 BOSTON MARATHON RUN FOR ALS ONE

By Beth & Emily Helenius

On April 18, 2022, we will run the 126th Boston Marathon with the ALS One team. We are running in...

130.765% Completed
US$26,153* raised
US$20,000 Target
0 DAYS

ALS ONE Boston Marathon Team

By Holly Mahling

Hi! I need your help. I'm taking part in 126th Boston Marathon to raise money for ALS ONE, who do...

84.775% Completed
US$10,173* raised
US$12,000 Target
* Includes funds from other sources.