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Active (17)

Voted as one of the most breath-taking courses in the world, the Two Oceans Marathon takes athletes on a spectacular course around the Cape Peninsula. Join in on Cape ...

health, rarediseases, marathon, twooceansmarathon, running, twooceans, rare, run4rare

We’re calling on individuals, ambassadors, schools, influencers, warriors, healthcare professionals and corporate partners to brighten up this Rare Disease Day with al...

health, rarediseases, fundraiser, health, raredisease, rare, rarediseaseday

R350 raised

Assist Rare Diseases South Africa in our fight to provide our patients with the treatment they deserve.Unfortunately, in some situations we find ourselves in court fig...

health, legal, treatment, medicalaid, lifesaving, legalfees, court, medicalschemes

R5,610 raised

The Zach and Friends Fund has been set up specifically to support families and patients impacted by MPS II.


With so many elements of our healthcare system being complex, often patients are not informed of their healthcare rights and responsibilities.With educational content,...

health, healthcare, DearMinisterOfHealth, HealthAdvocacy

R85,536 raised

Genetic testing in South Africa is limited and expensive; however it is a crucial step in a Rare patient’s journey to diagnosis. Genetic testing may be performed local...

health, rarediseases, testing, rare, genetics, congenitaldisorders, gene, genetictesting

R1,200 raised

The Ride Joburg is BACK so buckle up and prepare to pedal! We're fundraising for our rare community! Did you know that 1 in 15 South Africans is affected by a rar...

health, cycling, 947, ride, health, ride4rare, activists, ridejoburg

R282,743* raised
* Total includes R270,707 raised from sources outside GivenGain.

Everyone should have access to life saving treatment. At Rare Disease South Africa we believe that no patient should be excluded from accessing and adhering to life s...

health, rarediseases, transport, treatment

It’s us again. Offending people with our explicit language. But here is the thing - there is a vulnerable group of people fondly known as rare disease patients. They a...

health, raredisease, profanitiesforpurpose

R7,625 raised

It's Rare Diseases South Africa's 8th Birthday on the 14th of May and the greatest gift we could ask for is help and support to enable us to help others!


1 in 15 South Africans are affected by Rare Diseases…. Yes, you read that correctly – 1 in 15! That is the equivalent of 1 player in every rugby team.This year, we’re ...


R40,032 raised

As potential donors, we understand that you want to know that your contribution is going directly to a charitable cause – that it has a direct, positive effect on some...


R900 raised
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