During the course of February, Rare Diseases South Africa aims on focusing on increasing the visibility of rare diseases among the general public by ‘Bridging the Gap’ from rare disease advocacy to living beyond diagnoses.
Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to support the path towards universal health care; ensuring the chronically ill, including those with rare diseases, are not marginalised and receive appropriate and timely access to diagnosis and treatment.
In support of Rare Disease Day, the public is encouraged to get involved by purchasing a denim ribbon and wearing their jeans for ‘genes’ (as many life-threatening illnesses are genetic in origin) on Thursday, 28 February 2019.
Followers can ‘Show you Care for Rare’: #ShowYourRare, by painting their faces and taking a selfie with friends, family or colleagues and posting their images on any social media platform.
In addition to supporting the initiative #ShowYourRare, we encourage the public to look beyond their daily medical needs and consider those who live with life-threating illness and considering the impact it could have on their lives after diagnoses is made.
For more information visit www.rarediseases.co.za and follow us on the platform below: