R 21,617
Raised in South African rand
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Rare Diseases South Africa

With so many elements of our healthcare system being complex, often patients are not informed of their healthcare rights and responsibilities.
With educational content, and powered advocacy, voicing the needs of all healthcare users, we intend to find a way to be heard and to generate change.
Founded on research-based evidence, civil society alliance-building and effective engagement with policy makers,his platform will facilitate self-advocacy, generate debate, monitor implementation of health policies and highlight specific shortfalls in implementation. . It will also offer patients and healthcare users the opportunity to unite, speak up, collaborate and voice their issues to help leverage change in healthcare in South Africa. The more people involved the more change we can leverage!

Key Focus Areas
While this is a Rare Diseases South Africa (RDSA) initiative and will kick off with an issue related to Prescribed Minimum Benefits (PMBs), it is open to all healthcare users to raise their issues and we anticipate participation across disease groupings for all – including common, rare, infectious and non-communicable diseases. Focus areas identified for inclusion
• Health Policy
• Health Care Access and Financing
• Resources to educate patients so they can make well-informed healthcare decisions
• Policy Implementation
This initiative is conceptualised by Kelly du Plessis, the founder and CEO of RDSA, who has dedicated the last decade of her career to advancing healthcare access for many marginalised and vulnerable communities in South Africa and further afield

Join us today to ensure that all patients in South African have greater recognition, support, better health care, and a better overall quality of life.


Rare Diseases South Africa
The Station
63 Peter Place
South Africa
Telephone: 0105943844
Registration #: 120-991
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