Rare Diseases South Africa
Rare Diseases South Africa is a registered NPO (NPO # 120-991), and Public Benefit Organization (PBO #930044787) which aims to ensure that all Rare...
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Olive became critically ill at seven weeks of age due to an unexpected and severe anaemia. That was the start of the journey to diagnosing her with Diamond-Blackfan Anaemia, a rare genetic disorder which results in bone marrow failure, early onset cancers and congenital abnormalities. She has endured multiple invasive investigations, including a bone marrow biopsy, and in her six months of life has spent more time in hospital than ...