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Featured campaign

  1. Genetic testing in South Africa is limited and expensive; however it is a crucial step in a Rare patient’s journey to diagnosis. Genetic testing may be performed locally or internationally. Medical aids typically cover the cost of local testing (to some degree) but not overseas testing; however, it can be more cost effective to perform genetic testing at an overseas laboratory.At RDSA we are very aware of the importance of a diagnosi...

    health, rarediseases, testing, rare, genetics, congenitaldisorders, gene, genetictesting

Other campaigns

  1. Ride4Rare 2022
    For all our Rare ACTIVists participating in the Ride Joburg 2022
    View campaign
  2. Ride4Rare: The 36ONE MTB Challenge
    Russell is Riding the The 36ONE MTB Challenge for RDSA!
    View campaign
  3. Get Them Moving: Transport for Treatment
    We often see patients with rare diseases or genetic disorders who struggle financially and abandon treatment due to lack of transport or funding.
    View campaign

Fundraiser projects

Raise for Rarity

By Nivesh Nagar

My name is Nivesh Nagar, Guillain-Barré (Ghee-YAN Bah-RAY) syndrome (GBS) survivor and a Chronic ...

24.7565% Completed
R99,026 raised
R400,000 Target

Don't cry for me Argentina!

By Andries Els

Andries has Cystic Fibroses (CF), he is engaged to Niqii and wants to spend the rest of his life ...

32.2067391304348% Completed
R148,151 raised
R460,000 Target

I am #Riding4Rare for Rare Diseases South Africa

By Chone Cannon

Hi! I need your help. I'm taking part in 947 Ride Joburg 2022 to raise money for Rare Diseases So...

99.3% Completed
R1,986 raised
R2,000 Target

Elmi Smith - Rare Diseases

By elmi smith

Hi! I'll appreciate your support. I am raising money for Rare Diseases South Africa. Please donat...

4.5% Completed
R450 raised
R10,000 Target