MSSA is a registered NPO (nonprofit organization). MSSA serves people with MS in the whole of South Africa. The Eastern Cape is the birthplace of the foundation in particular when Dr Dean established the chapter in PE in 1966. It is therefore special and we celebrated 50th Anniversary in Port Elizabeth in June 2016. We are an organization that understands the needs of PwMS (Persons with MS), their families, carers and support structures
Dear Friend of Multiple Sclerosis
Multiple Sclerosis (MS) is a chronic, degenerative illness of the central nervous system (the brain and spinal cord). It is also an auto-immune illness because it is believed that the immune system attacks the myelin sheath (insulation around the nerve fibres) leaving multiple scars. These scars hinder the communication of messages between the nerves, interfering with the body’s ability to do what it should. Thus, MS can lead to physical impairments, such as loss of mobility, spasticity, vision problems or even cognitive difficulties. The cause of MS is yet unknown and a cure is yet to be found.
When a person is diagnosed with MS, he or she is faced with many questions, such as - What is MS? What is going to happen to me? Will I end up in a wheelchair? Is there any way of treating MS? Aside from these questions, he or she may experience feelings of shock, grief, anxiety, disbelief, confusion, anger, or depression. MS also impacts his or her family and friends, in similar ways, in that they also want to know what MS is, and if they still have time with their loved one. They want to know how to cope with this diagnosis and how to assist and support their loved one. They may experience similar feelings, and even feel helpless or guilty. Lifestyle adjustments may also need to be made.
In a nutshell, MS affects the general functioning of both the person with the illness and his or her loved ones. The illness generally has a negative impact on emotional, psychological, social, economic and, or spiritual functioning. As you might imagine, an MS diagnosis can be a traumatic and stressful process. The role of the MSSA is thus to try and lessen the negative impact that PwMS and their loved ones might experience. That being said, persons with MS can lead relatively normal and positive lives, although some lifestyle adjustments may need to be made.
MSSA Vision: The MSSA envisions the opening of an MS-specific Centre, in the long-term, that would ideally have a multi-disciplinary team in place, to meet the needs of the persons with MS PwMS, in a holistic manner. The central aim of such a centre would, thus, be to assist the PwMS to live and cope positively and well with MS, and to have an improved quality of life, by promoting physical, psychological, spiritual, emotional, social, and economic well-being. Of course, what is really hoped for is a cure for MS.
MSSA Mission: The MSSA mission is to serve the MS community with the aim of empowering and improving the quality of life of PwMS and their loved ones and to promote their general well-being.
MSSA Survival: In order to continue to offer services to the MS Community, the MSSA needs the following:
- Ongoing funding through donations, sponsorship, fundraisers, corporate social responsibility, government.
- Volunteers to help us with fundraising, projects and awareness
- Events / Talks / Workshops
- Quarterly Newsletter
We currently offer the following services as we work toward the achievement of our Vision and Mission:
- Economic Assistance of PwMS - Grants
- Assistance with Incontinence Products
- Home visits where possible
- Referrals and Guidance
- Resources and Information
- Fundraising and Awareness
- Support groups
- Events / Info talks / Workshops
- Volunteer Programme
Operates in: the whole of SA
Established in: July 1966
Non-Profit Organisation Number: 003-275
Public Benefit Organisation Number: 9300-175-06
Contact person: Non Smit
- See more at: https://www.givengain.com/cause/3185/campaigns/12432/
Please use the hashtag #funds4ms
Three ways to support the MS Society:
• Pay with SnapScan -
• Make a deposit to MSSA WC, Standard Bank account no. 0730 84 697, Tyger Manor branch code 05041000. Please reference your name and tel. Tax certificates available on request.